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Annual Report
2024–2025

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Acknowledgement Of Country

Carers ACT acknowledges the Ngunnawal and Dharawal peoples as the traditional custodians of the lands on which our services operate and recognise any other people and families with connection to these lands. We pay our respects to their Elders past and present and we extend that respect to all Aboriginal and Torres Strait Islander peoples.

We acknowledge and respect their continuing culture and the contribution they continue to make to the of life of the cities and regions in which we work and care. 

About Carers ACT

Who are carers

A carer is a family member or friend who provides assistance with the tasks of daily living to someone who has disability, a medical condition including chronic or terminal illness, a mental illness or who is aged and frail. In the ACT, this also includes people who provide kinship or foster care for a child or young person in the out of home care system.

Who we are

Carers ACT is a non-government, not-for-profit organisation solely dedicated to supporting and representing unpaid carers in the ACT for more than 30 years.

As a trusted partner in care, we walk alongside carers to help them sustain their caring role, building capability, strengthening wellbeing, and offering programs and services that support them at every stage of their caring journey.

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We have a deep understanding of how caring can impact everyday life and personal goals. Our knowledge of the local community, and of the systems carers often navigate, such as disability, mental health, and aged care means carers don’t need to start from scratch or explain themselves twice.

At Carers ACT, we are passionate about making a meaningful difference in the lives of carers. We see and hear carers where others may not, standing beside them through the everyday challenges and the hardest moments. From our humble beginnings, carers have always been, and remain, at the heart of everything we do.

Through our advocacy and partnerships with government and community organisations, we’re working to create a more inclusive, compassionate, and connected Canberra that recognises, respects, and values the vital role of carers.

What we do

Our purpose is to support, connect, and empower carers to sustain their caring role while maintaining their own health and wellbeing.

We strengthen carers’ confidence and capability through services that are practical, responsive, and person-centred. Across all that we do  — from respite and wellbeing programs to advocacy and education — we provide opportunities for connection, self-care, and growth, helping carers manage the challenges of caring while maintaining balance in their own lives.

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We represent the voices of carers in the ACT, working with decision-makers to ensure carers are recognised and included in policy development, service design, and implementation. As part of the National Network of Carer Associations, we also collaborate nationally to promote awareness and achieve better outcomes for carers across Australia.

Our services include:

  • Carer Gateway  
  • Carer Support Groups  
  • Cottage Respite Care  
  • Culturally and Linguistically Diverse (CALD) Groups  
  • Equipment Provision  
  • Flexible Respite  
  • Kinship and Foster Carers Program  
  • NDIS Support Coordination  
  • Post Hospital Support Program  
  • Staying at Home Program
  • Systemic Advocacy and Mental Health Carers Voice  
  • The Hub (NDIS Day Program)  
  • Wellbeing and Connection Programs  
  • Young Carers Program

Together, these programs and supports reflect our commitment to recognising carers as partners in care — empowering them to maintain their wellbeing, stay connected, and continue making a difference in the lives of those they care for.

Foreword

"On behalf of the Board I thank all of our hard working staff for their dedication and we look forward to continuing to support and empower ACT's carers."
Thili Perera

Dear Carers, Stakeholders and Supporters,

I am pleased to present the Carers ACT Annual Report 2024-25.

This year has been one of significant change and achievement for Carers ACT. As an organisation, we have continued to strengthen our voice and impact while remaining firmly grounded in our purpose to recognise, support and empower carers across Canberra.

In March 2025, we farewelled our long-serving CEO, Lisa Kelly. Lisa’s leadership and commitment over many years positioned Carers ACT as a trusted advocate and service provider for the more than 58,000 carers in our community.  We thank Lisa for her dedicated service, and wish her all the best for the future.

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In April 2025, we welcomed Cain Beckett as our new CEO. Cain brings a deep understanding of inclusion, social policy and systems change. These skills are seen by the Board as critical to the future success of Carers ACT. Under Cain’s guidance, we are continuing to ensure that carers’ voices influence every level of decision-making in the ACT.

This year, we secured several significant commitments for carers in the ACT election, marking a major step forward in recognising and responding to carer voices. Alongside this, Carers ACT has continued to deliver flexible and practical supports to carers and the people they support. From programs that strengthen wellbeing and social connection to initiatives that provide targeted assistance for carers navigating complex systems, our work is focused on meeting carer needs across all stages of their caring journey.

This report highlights our shared achievements, ongoing partnerships, service delivery milestones, and the continued focus on improving health, wellbeing, financial security and social connection for carers. While there is still work ahead, the momentum of this past year positions Carers ACT strongly for the future.

On behalf of the Board I thank all of our hard working staff for their dedication and we look forward to continuing to support and empower ACT's carers. I am equally grateful to our supporters and funding partners, particularly the Shaw Building Group, whose 20 years of generous support enable us to provide flexible programs and services that would not otherwise be possible. I also thank my fellow board members and every carer who continues to share their experiences with honesty and courage, helping us drive meaningful change for all carers in the ACT.

Yours sincerely

Thili Perera
Board Chair, Carers ACT

CEO Report

“Carer voices have informed key reforms across service delivery, rights and recognition.”

 Dear Carers ACT Community,

It is my pleasure to present my first Annual Report as CEO of Carers ACT.

My first couple of months leading our marvellous team have been really inspiring, I feel I am still learning, and I am looking forward to what we can achieve together.

Carers ACT has an outstanding reputation as an organisation grounded in genuine care. This care extends both to those who need support and to those who provide it. Since stepping into this role, I have seen firsthand the integrity, compassion and commitment that define this organisation and the people who make it what it is.

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Through each of our roles, leading advocacy, coordinating via the Carer Gateway, and delivering critical services directly, we have a wide reach, and we bring your perspectives and needs to our trusted relationships with both the ACT and Commonwealth governments.

I am also conscious of the dedication, resilience and insight of carers across our city. Your experiences guide everything we do and are central to shaping our services, programs and advocacy that create meaningful change. The impact of caring extends beyond health, disability and aged care into areas as diverse as housing, education and transport. It reminds us that supporting carers is not a niche policy issue. It is a whole-of-community priority that shapes the wellbeing of the ACT as a whole.

So much happens at Carers ACT each day. In the last year, Carers ACT supported more than 4,000 people, facilitated over 1,200 counselling and coaching sessions, delivered close to 1,500 activities and held countless conversations with carers. We have also grown our teams and expanded our partnerships to ensure carers can access support when and how they need it. It is no wonder 96% of our staff say they feel proud to work here.

Our advocacy has also achieved results. Carer voices have informed key reforms across service delivery, rights and recognition. Through our ACT election campaign, we secured commitments on six of the eight priorities we presented. This is our strongest outcome to date and a clear reflection of the power of coordinated advocacy.

The release of the National Carer Strategy in late 2024 marked another defining moment, with Canberra’s carers making significant contributions that helped shape national priorities and actions.

I want to especially thank our partners Shaw Building Group for their invaluable support which enables us to provide the extra supports and services which aren’t funded by Government. I also want to thank my dedicated volunteer board members. Not only for all their support in guiding Carers ACT and our strategy, but for the opportunity to join our team and lead this incredible organisation.

Looking ahead, our objective as an organisation is to grow, to deliver more of the services you need and across a wider footprint into regions around Canberra. We have some exciting initiatives in the pipeline, which you should be starting to see by the time this report is published. We will continue to build on this momentum by finding new and innovative ways to strengthen service delivery and community connection.

Together with carers, our partners and the wider community, we will keep working toward a Canberra that cares for carers.

Warm regards

Cain Beckett
‍Chief Executive Officer
Carers ACT

Our partners

Shaw Building Group

Carers ACT extends our heartfelt thanks to Shaw Building Group for their extraordinary 20-years of unwavering support. Their continued generosity, including this year’s contributions of $230,000 raised at their annual bowls event, has brought the total raised for carers in Canberra to nearly $2 million. These funds allow us to support carers in flexible and responsive ways, providing assistance where other funding doesn’t reach.  We are deeply grateful to Shaw Building Group for their enduring commitment and genuine care for the thousands of unpaid carers in the ACT. Their support extends beyond financial contributions; it represents recognition of the essential role carers play, the respect they deserve, and promotes the spirit of a community that cares for carers.

School Holiday Support

Carers ACT utilised Shaw funding to assist a parent who cares for a young child with high support needs in accessing a specialised school holiday program. This program offered the child a structured and enjoyable environment, while also providing the carer with essential respite and recovery time. This short-term support alleviated immediate stress, prevented burnout, and helped the family maintain stability while they reviewed long-term NDIS supports.

Temporary Cottage Respite

A carer traveling overseas received Shaw funding to cover short-term cottage respite for their parent, who was recovering from knee surgery. With limited personal funds and exhausted aged-care package support, this funding ensured safe and continuous care for the recipient while providing peace of mind for the carer during their absence.

Community Support

Carers ACT is deeply grateful to the many individuals and organisations whose financial contributions, volunteer efforts, and partnership over the past year have made a meaningful difference in the lives of carers and the people they support.

We extend this thanks to the services that work alongside us, sharing information about supports with carers who might not yet know about them, and the organisations that help amplify carers voices in advocacy and policy. We also extend sincere thanks to the carers who generously shared their experiences, contributing to media, government consultations, forums and committees. Their advocacy has been instrumental in making positive change for carers in our community.

Funding Support

Carers ACT would like to acknowledge the funding and support received from:

  • Australian Government Department of Health, Disability and Ageing
  • ACT Government Health and Community Services Directorate

Our values

Our Values guide how we support carers and create impact in our community

At Carers ACT, our values reflect who we are and how we work. We are passionate about making a real difference in the lives of carers — walking alongside them through every stage of their journey. We listen, understand, and advocate where others may not, providing genuine support during both the everyday challenges and the hardest times. Our values drive us to act with compassion, integrity, and respect in everything we do.

We Care About 

  • Carers: We walk beside carers, recognising their strength, resilience, and vital contribution.
  • The people they care for: We value every individual receiving care, supporting them with dignity and respect.
  • Our staff: We empower our people and foster a culture of compassion, collaboration, and purpose.‍
  • A community that cares for Carers: We strive for a community that recognises, includes, and supports carers every day.

Carers ACT aspires to be a trusted partner in care through demonstrating our core values of 

  • Courage: We act with integrity and confidence, speaking up for carers and standing by them through challenge and change.
  • Innovation:  We embrace new ideas and approaches to improve outcomes and deliver meaningful support.
  • Connection:  We build genuine relationships founded on empathy, trust, and shared understanding.
  • Carer–centered practice: We put carers at the heart of everything we do, ensuring their voices guide our actions and decisions.

We support, connect and empower carers to maintain their caring role and personal wellbeing

  • Customer–centric in all we do: We listen first and respond with empathy, ensuring carers’ needs shape every action we take.
  • Brave and courageous in what we say and do: We speak up, challenge barriers, and stand firm in advocating for carers and their rights.
  • Innovative in our approach: We seek fresh ideas and creative solutions that improve outcomes and strengthen support.
  • Collaborative partners: We work together across teams and sectors, building strong partnerships that create shared impact.
  • High quality care: We are committed to excellence in everything we do, delivering safe, person–centred and reliable support.

Our work

Through our work, we support, connect, and advocate for carers 

Carers ACT delivers meaningful support to carers through three core roles:

  • We support: As a service provider, we design and deliver services that have a tangible, positive impact for carers and respond directly to their needs.
  • We connect: As a service navigator, we remove barriers to support and help carers access services, resources and guidance throughout their caring journey. 
  • We empower: As an influential advocate and change maker, we listen to and elevate the voices of carers across the community.

Our strategic imperatives:

Partnership Broker

We partner with carers and key influencers to provide trusted information, connection and support. Through collaboration with community organisations, the National Network and Carers Australia, we strengthen awareness and recognition of carers locally and nationally.

Responsible Decision Maker

We ensure Carers ACT remains sustainable, effective, adaptable and responsive to new opportunities. Strong governance, sound business practices and continuous improvement underpin the safe, high-quality delivery of services that support our purpose and mission.

Enable Quality

We collaborate, deliver and promote safe, high-quality services that have a positive impact on carers. By helping carers navigate service systems and connecting them to supports that meet their needs, we strengthen their ability to sustain their caring role.

Advocating to strengthen recognition and support for carers

Systemic Advocacy

  • Partnered with carers to gather their unique insights, including through Carer Collective focus groups, attendance at carer events, surveys, ad hoc meetings, and conferences.
  • Amplified the voices of carers through strategic representation on over 40 committees and working groups and participation in more than 150 meetings, covering topics like health, disability, public infrastructure, voting, transport, gender diversity and accessibility.
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  • Delivered a highly successful Stand with Carers campaign for the 2024 ACT election, securing six of eight key commitments for carers and then supporting Carers Australia in advancing national election priorities.
  • Ensured Canberra carers’ voices were reflected in the development of the National Carer Strategy 2024 by supporting carers to attend roundtables, conducting our own consultations, and lodging formal submissions.
  • Collaborated with fellow members of the National Network of Carer Organisations to inform advocacy across federal systems impacting carers, including NDIS and MyAged Care changes.
  • Informed carer inclusion across more than 50 Canberra Health Services policies, procedures and frameworks including new Voluntary Assisted Dying (VAD) documents such as the CHS Support Services Model of Care, ACT Health clinical documents, and contact person resources.
  • Expanded delivery of our carer awareness training presentations, delivering tailored sessions to both ACT and Federal Government departments, public and private hospital staff and at community forums.
  • Met regularly with Members of the ACT Legislative Assembly (MLAs) to raise emerging carer issues, provide suggested solutions and to ensure the commitments made to carers by Government are progressing. 
  • Provided opportunities and support for carers to engage in external consultations, legislative changes and system reforms, including through maintenance of the Carers ACT Open Opportunities webpage.

Mental Health Carers Voice (MHCV)

  • Facilitated the MHCV Advocacy and Policy Advisory Group (APAG), supporting carers to have their voices heard on a range of issues including youth mental health access, ACT services investment planning, regional suicide prevention, service interoperability, residential programs (including respite), local mental health legislation, and other key matters affecting mental health carers and their wellbeing.
  • Provided feedback on 30 Mental Health Service’s model of care, policy and procedure documents and lodged three formal submissions to influence ACT and national mental health policy to better reflect carer inclusion. 
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  • Delivered training to more than 100 mental health practitioners covering topics like carer identification and recognition, information sharing, and psychosocial support.  
  • Facilitated a carer Q&A session with the Chief Psychiatrist and facilitated Advocacy Foundation Skills training with mental health carers, with 91% of attendees reporting greater confidence in systemic advocacy.
  • Published 11 MHCV newsletters and 46 social media updates, alongside ongoing development of the online mental health Carer Navigator to improve service access and awareness.
  • Brought together over 100 mental health carers at our dedicated carer forum as part of the national TheMHS Conference in August 2024.
  • Collaborated with the ACT Government and Everymind to shape the Minds Together program, providing resources and support for carers in situations where the person they care for is experiencing mental distress.
  • Continued implementation of the Mental Health Carer’s Voice 2024–2027 Strategic Plan, advancing systemic advocacy priorities.

Kinship and Foster Carer Advocacy

  • Provided individual advocacy to 13 carers caring for a child or young person in a kinship or foster care arrangement.
  • Worked with new Canberra Out of Home Care panel providers to ensure kinship and foster carer rights, needs and supports are understood. 
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  • Following successful advocacy for a Charter of Rights for kinship and foster carers, worked with carers to provide detailed feedback to the department on its design and content.
  • Delivered training to Child, Youth and Families (CYF) Directorate staff to understand carer rights and how to embed them in their practice.
  • Continued active involvement with the Carer Wellbeing Joint Committee, supporting carers, directorate and agency staff to discuss emerging issues and collaborate on solutions.
  • Worked with carers to lodge a written submission to the Australian Institute of Family Studies review of foster, kinship and permanent carer payments, ensuring it reflected carers’ feedback and experiences.
  • Ensured kinship and foster carers are considered and recognised in the next stage of Next Step for Our Kids strategy through collaboration with CYF.
  • Collaborated with CYF to post the Carer Wellbeing and Respite Handbook to 360 kinship and foster carers in the ACT.
  • Progressed the development of an online Kinship and Foster Carer Resource Hub, collaborating with carers and web developers to create a comprehensive resource ready for launch. 

Our programs delivered meaningful support that improved the lives of carers and families

Taking Care of Carers: Respite, Wellbeing and Connection Activities 

Each year, Carers ACT supports hundreds of carers to take a break, connect with others, and focus on their own wellbeing. Through respite services and wellbeing programs, carers have opportunities to rest, recharge, and build resilience, reducing isolation and helping them sustain their caring role.

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Respite continues to be one of Carers ACT’s most valued services, offering carers the chance to pause and maintain balance in their lives. 118 carers accessed vital breaks through our respite cottages, supported by trained staff who ensure each stay is safe, restorative, and personalised.

Beyond respite, Carers ACT delivered a wide range of wellbeing and social connection programs guided by the 5 Ways to Wellbeing framework, supporting carers to stay active, aware, connected, generous, and always learning.

“I think it’s an absolutely excellent service. I have particularly enjoyed the companionship of the art classes. I found that to be a very safe, welcoming and non-judgemental space.”
– Carer, 2025

Be Active

261

carers participated in 268 activities such as tai chi sessions, walking groups, and gentle exercise workshops that encouraged movement, improved physical health, and reduced stress.

Be Aware

179

carers took part in 31 activities including mindfulness and meditation sessions, wellness talks, and self-care workshops that helped carers manage stress, practise gratitude, and strengthen emotional awareness.

Connect

497

carers engaged in 161 activities such as coffee catch-ups, art and craft groups, peer-support circles, and social outings including theatre and movie visits that provided space to share experiences and form meaningful connections.

Help Others

155

carers joined 28 activities through volunteer opportunities, peer mentoring, and community projects that allowed carers to share their knowledge and support others on similar journeys.

Keep Learning

373

carers participated in 170 activities such as educational workshops, creative arts programs, digital literacy classes, and information sessions that helped carers build confidence and develop new skills.

The People They Care For: Shared Activities That Build Connection and Wellbeing

Carers ACT programs create opportunities for carers and the people they care for to share meaningful experiences, strengthen relationships, and build lasting connections. These inclusive programs focus on wellbeing, belonging, and mutual support — recognising that time spent together can be just as restorative as time spent apart.

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Together, these programs celebrate connection — supporting carers and care recipients to share joy, find community, and thrive side by side.

“ACT Carers is amazing. The functions/activities organised are valued by all carers I know.”
50

carers and the people they care for participated together in two Illawarra Retreats, offering shared respite and connection.

160

carers and care recipients joined four ACT “Walking the Journey Together” Retreats, supporting relationship wellbeing and rest.

180

participants regularly attended Carers ACT’s social support groups for aged Indian, Italian, Muslim, and Sri-Lankan clients and their carers, strengthening cultural identity and community connection.

21

people living with disability participated in the Hub day program, maintaining social connection, developing essential life skills, and building confidence through community participation.

79

people living with disability were supported through Support Coordination, helping them live more independently and engage more fully in their communities.

Carer Gateway 

The Carer Gateway has supported more carers this financial year than in previous years and remains focused on strengthening systems and processes to support the delivery of holistic, person-centred support. This approach ensured carers continued to receive timely, flexible, and meaningful assistance tailored to their individual needs and circumstances.

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These results reflect our commitment to grow our service offering and support more ACT carers to sustain their wellbeing, manage their caring roles, and stay connected. We achieved this through greater investment in staff training and knowledge development, commencing professional reflective practice and building team capability to deliver a seamless, coordinated, and impactful support. Ongoing investment in workforce training, data insights, and carer feedback mechanisms will ensure services remain responsive, inclusive, and grounded in lived experience.

Service Statistics (1 July 2024 – 30 June 2025)

1,425

Carers supported (of which 473 are new to our service)

836

Counselling sessions delivered (supporting 302 carers)

405

Coaching sessions delivered (supporting 156 carers)

105

In-person peer support groups

Amina’s Journey
(Amina’s name has been changed to protect her privacy.)

Amina, a 17-year-old young carer, reached out to Carers ACT for support while caring for her three younger siblings—two diagnosed with Autism and one with Attention Deficit Hyperactivity Disorder (ADHD). Amina managed their daily routines, supported them with schoolwork, prepared meals, and maintained the household—all while beginning her first year at university.

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Balancing these responsibilities left Amina exhausted, isolated, and unsure how to manage her studies and self-care. The Carer Gateway, Shaw funding, and the Groups and Programs team created a tailored action plan to support Amina to achieve independence and a sense of wellbeing. This package included regular counselling, study technology assistance, driving lessons, a gym membership, resume preparation and interview coaching.

Six months later, Amina’s  progress has been inspiring. She is now successfully balancing her university studies, caring responsibilities, and part-time work. Her physical and mental wellbeing have improved through regular exercise and counselling support. Amina now feels positive about her caring role, viewing it as meaningful time spent with her family and as an investment in her own personal skills development.

Her university has granted reasonable adjustments to support her studies, and she feels confident about reaching completion with good results. Amina will soon gain her provisional licence which will allow her to transport her brothers to medical appointments and support her family more independently. She continues to work part-time which validates her self-worth, gains her valuable experience work experience and secures her savings for her future.

Amina’s story reflects the transformative impact of holistic and coordinated support, and the resilience of young carers when provided with the right tools, guidance, and encouragement.

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Post Hospital Support Program 

The Post Hospital Support Program (PHSP) aims to support carers and care recipients following a hospital admission. The program provides up to 6 weeks of tailored low intensity, non-clinical support.

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There is high demand for this type of service to ensure acute care beds remain accessible at Canberra's three public hospitals. Carers ACT have embedded case workers within the discharge planning teams at The Canberra Hospital and North Canberra Hospital.

In partnership with the ACT Health Directorate and hospital staff we continue to refine outcome measures and streamline referral processes to ensure timely, fit for purpose care is delivered.

This financial year, 1,596 participants have used the service to support the transition from hospital to home and they report greater confidence, stability in their caring routine and improved interpersonal relationships. Over 200 participants have been referred to the program in the first quarter of 2025–2026.

This new program demonstrates the value of Carers ACT in improving the patient and carer hospital discharge experience by reducing carer stress and length of stay in hospital. We anticipate the demand will remain high and will continue to grow over the coming year.

Of the 1,596 participants:

60%

were over-65 and used the PHSP to provide bridging support in the short term following hospital admission prior to utilisation of approved government packages.

63%

of clients were assessed as requiring support needs higher than their funded aged care or disability packages and were therefore supported to access additional services in line with their needs through the CATS network.

90%

of eligible participants were connected with the Carer Gateway to receive carer-specific supports.

Staying At Home Program

The Staying at Home Program focusses on supporting individuals with an early diagnosis of dementia and their carers whilst they are still living at home. The program brings  carers and care recipients together to share their lived experience and provide support for one another in a facilitated way. The uniqueness of this program is that it simultaneously meets the needs of carers and their loved ones affected by dementia in a way that validates their feelings, builds their physical and mental resilience and improves quality of life for both participants.

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Carers tell us they no longer feel alone in the dementia journey — they are learning more than they expected, asking long-held questions, and finding comfort among others who truly understand. Meanwhile, the person living with dementia engages in meaningful activities, builds friendships, and finds joy through games, storytelling, and shared experiences.

Since its launch in March this year, four programs, have supported 26 carers and 26 care recipients. Each program consists of weekly group activities and weekly couple sessions with a facilitator  for a period of 6 weeks culminating in a weekend retreat  at selected destinations in the Southern Highlands – creating valued time together to rest and recharge. These shared experiences have strengthened understanding, reduced isolation, and created meaningful opportunities for carers and the people they care for to learn, rest, connect and support each other.

Carer reported outcomes include:

  • ‍‍Gaining a deeper understanding of a dementia diagnosis and what to expect as the disease progresses.
  • Improving their ability to prioritise their own mental health and learning coping strategies.
  • Building confidence in how to support their loved one through each stage of dementia.
  • Gained knowledge about medications and palliative care.
  • Learnt how to access available supports and services.

Care recipient (people living with dementia) reported outcomes

  • Felt genuinely heard and supported in a safe and inclusive environment.
  • Found space to express feelings and concerns about their diagnosis.
  • Engaged in reminiscence activities that spark joy and connection.
  • Formed new friendships with other families on similar journeys.
  • Enjoyed community outings that promote independence and social engagement.
  • Created “My Life Story” books capturing personal memories and milestones.

The newly formed team has quickly established strong community connections and has introduced innovative Virtual Reality sessions, allowing carers and clients to share immersive experiences — from swimming with sea creatures to visiting faraway places — without leaving their seats.

Participants report that they have benefited from the program so much that they have high appetite to maintain connections with their group. 

This financial year we hope to expand the program to support program recipients to maintain their connections. In addition, Carers ACT are collaborating with the University of Canberra to commence quantifying the value offered by this program.

Retreat Highlights

The overnight retreats remain a highlight—filled with shared meals, laughter, karaoke, trivia, and creative paint-and-sip sessions. Carers describe the retreats as “restorative and joyful.” 

“Not only were the staff members amazing, the program was wonderful. My husband enjoyed creating his Life Story book—it helped us both feel connected and supported.” 
“We enjoyed the retreat so much, it was beautifully arranged and helped me understand what my husband is going through. We felt very spoilt.”

Groups and Programs  

The Groups and Programs this year has reflects the innovation of our team – more programs, more diversity and more individualised offerings to ensure tailored programs that reflect the  identified needs of individual carers. It has been exciting to share the journey of our carers and to witness their connection with others, their resilience, compassion, relaxation and joy.

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In 2024-2025 new initiatives were developed in response to carer feedback, these included:

  • Launch of new Multicultural, Men’s, and Walking Groups
  • Introduction of the Nutrition with Justin workshops, promoting health and wellbeing.
  • Expansion of existing day trips to include visits to Wollongong to visit the Sikh Temple, a trip to a musical in Sydney, fish and chips in Batemans Bay, and Cherry Picking in Orange.

We have actively partnered with organisations this year to expand the diversity of what we offer and strengthen our capacity to meet the range of needs expressed by carers. These partnerships include Bunnings, Volunteering ACT, Legal Aid, ADACAS, CARE Financial and equipment provider TADACT.

“The hotel retreat people and retreats have been a lifeline. Without them I’d not feel supported. The respite at the Cottage is a life saver.”
"Carers ACT provides a very good service. I have always valued the Carers activities and outings — they’ve always felt like a safe place to go.”
“Such positive and supportive people. A good range of activities to support carers with different interests.”

Service Statistics

455

events delivered (677 regular participants) for Community Assistance and Temporary Support Program (CATS) Group

63

events delivered (196 regular participants) for Cultural and Linguistically Diverse (CALD) Group

‍

202

events delivered (103 regular participants) for Commonwealth Home Support Program (CHSP) Group

‍

4

events delivered (97 regular participants) for CHSP Retreats Innovation

‍

Provided essential in-home and transport supports for CHSP Flexible Respite

‍

$118,970

in support provided (381 items supplied, most popular: personal alarms) for CHSP Goods, Equipment & Assistive Technology

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Rina’s Story (name changed for privacy)

Rina cares for her husband, Arun, who is paralysed and bedridden. Through the Commonwealth Home Support Program (CHSP) social support group, Rina has stayed engaged and active, attending Multicultural day trips and workshops.

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Collaboration between Carer Gateway and Flexible Respite allowed Rina to access in-home support for Arun, enabling her to attend community activities and take short breaks. When it became clear that Arun’s Home Care Package (HCP) Level 4 funds were fully utilised, staff coordinated with his service provider to access further support to allow him to continue living at home. This creative approach provided relief for both Rina and her husband, easing financial strain and allowing Rina to maintain her wellbeing.

Mina’s Story (name changed for privacy)

Mina, in her late seventies, joined the Multicultural Group’s day trip to Batemans Bay—her first trip outside the ACT in more than 15 years. Living alone with limited mobility and without transport had gradually limited her independence.  The trip renewed her confidence and sense of independence, leaving her feeling capable, hopeful, and reconnected with her community.

Cottage Respite Program

The Cottages Respite Program offers 24/7 short term, personal care and domestic support in a home like environment. 

Throughout 2024–25, the team strengthened service coordination and client support, appointing a dedicated Bookings Officer and Clinical Intake Officer to enhance referral management, assessment processes, and the delivery of tailored respite services. These roles have improved communication, efficiency, and support for carers seeking planned or emergency respite.

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Looking ahead, Carers ACT will open a second cottage in Crace during Carers Week in October 2025. This modern, purpose-built facility will expand respite capacity and strengthen the support available to carers and the people they care for. Across 2025–26, Carers ACT will continue to enhance its respite services across all sites, ensuring they remain flexible, accessible, and responsive to the diverse needs of the ACT community.

Across the financial year, the cottages provided respite for 125 care recipients across existing sites:

65

care recipients at Deakin Cottage

60

care recipients at Isaacs Cottage:

Angela and David’s Journey (names changed for privacy)

Angela and her husband David first accessed respite through Isaacs Cottage, where Angela was both a carer and a recipient. This arrangement allowed her to continue providing care for David in a supportive environment.

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Since the opening of Crace Cottage, Angela has placed her trust in the Carers ACT team to provide dedicated support for David, giving her valuable time for self-care and rest. The couple are now regular attendees, and Angela has shared that the program gives her peace of mind and the opportunity to restore her own wellbeing while maintaining her caring role at home.

The Hub (Disability Day Program)   

The day program for people with disabilities operates Monday to Friday from our Hub in Holt. This year it supported attendance by 21 participants. Aimed at supporting adults with disability, programs provide a supportive, inclusive, and engaging environment where participants can build independence, social confidence, and essential life skills – this is achieved by combining creative, practical, and community-based activities.

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Creativity and self-expression remain at the heart of the Hub. Participants regularly showcase their musical talents by performing songs at community events such as Reconciliation Day, ANZAC Day, and Easter celebrations. The twice-weekly swimming program continues to build health, confidence, and independence, while centre-based activities such as cooking independent lunches help participants develop teamwork, planning, and meal-preparation skills. We complement these activities with visits to the bowling alley and cinema as well as walking in nature and visiting local cafes.

In addition, we have initiated life education to include sex and consent, arts, crafts, basic financial skills, using public transport and an introduction to music – all activities that build confidence, independence,  creativity, communication, and connection.

We continue to field a high level of enquiries and 2025-2026 promises to be a year of growth.

Carer Satisfaction

Results from the Carers ACT Satisfaction & Engagement Survey Report FY2024–2025:

Carers ACT remains committed to providing high-quality, person-centred support that makes a real difference in carers’ lives. Results from the Carers ACT Satisfaction and Engagement Survey for the 2024–25 financial year reflect strong levels of trust, respect, and satisfaction among carers accessing our services.

88.19%

of carers felt heard, supported, and respected by Carers ACT.

82.40%

of carers reported that the support provided by Carers ACT helped them manage their role as a carer.

86.05%

of carers were satisfied with the services they received.

76.00%

of carers felt able to deal with the issues they sought help for.

The support from Carers ACT made me feel less alone and more capable of managing everything.
The support provided by Carers ACT was invaluable. It helped me navigate challenging situations and understand my caring role better.
You provide amazing services to help carers like me, and I can’t thank you enough for your continuing help and support.

Stand with carers campaign

Leading change for carers in the 2024 ACT Election

At Carers ACT, advocating for better outcomes for carers is at the heart of everything we do. Many carers continue to face challenges that go unseen, including financial strain, limited respite options, and barriers to recognition and support. To bring these issues to the forefront, we launched the Stand with Carers campaign to influence policy and raise public awareness in the lead-up to the 2024 ACT Election.

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The campaign aimed to ensure carers were recognised in political decision-making and community conversations, focusing on eight key election priorities designed to address critical gaps in carer recognition, inclusion, and support. 

To ensure candidates heard carers directly, we invited all parties to our offices to meet carers and share their commitments. Each candidate received A Call to Be Seen, a book featuring quotes from Canberra’s carers that highlight the realities of caring.

We kept carers and supporters informed with regular campaign updates, including summaries of commitments made by each political party, information on policy impacts, and supporter packs containing letter templates, handouts, candidate contacts, and social media resources.

The campaign was a major success, with six of our eight election priorities adopted as commitments by the returning ACT Labor Government. We are now working closely with ministers to turn these commitments into tangible outcomes that improve the lives of carers across Canberra.

We extend our heartfelt thanks to everyone who contributed - from carers who shared their stories, to volunteers who helped distribute campaign materials. Your support helped bring Canberra one step closer to stronger recognition, inclusion, and wellbeing for carers.

ACT Carers Strategy Update 2018-2028

Carers ACT continues to work in partnership with the ACT Government, carers and the community sector to progress the ACT Carers Strategy 2018–2028. Designed for and by carers, this framework guides how the ACT community supports, recognises and includes carers in all aspects of Canberra life.

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Our work throughout 2024–25 focused on advancing the Strategy’s priority areas: recognition, education, access to information, ongoing carer engagement, and enhanced support services. These priorities underpin all our advocacy, service delivery and systems work described throughout this annual report.

In addition to the aforementioned work undertaken to progress the Carers Strategy, we delivered several other initiatives, including some standout examples outlined below.

In March 2025, we hosted a dedicated carer event to celebrate the Strategy’s achievements over the past seven years and guide priorities for its final phase. Held on Canberra’s Love Boat, the event brought together carers who have contributed to the Strategy since its inception, offering a chance to reflect on progress, celebrate success, and identify areas where progress is still needed. 

Recognition and respite remained key issues for carers, so we partnered with Two Before Ten on an awareness campaign encouraging Canberrans to donate the cost of a cup of coffee to help carers take a break over Christmas. The campaign attracted a large following on social media and was further promoted through in-café advertising, which not only helped carers realise and acknowledge their role, but also increased community understanding of the challenges carers face and the importance of supporting them.

Our monthly Carer Collectives are a direct Strategy initiative that continued to provide a platform for carers to share experiences and shape advocacy throughout 2024-25. Each focus group session explores a different topic, with this year's themes ranging from healthcare access to financial stress, ensuring the priorities of the Strategy remain responsive to changing circumstances and emerging issues.

As the Strategy enters its final phase, Carers ACT continues to collaborate with the ACT Government on planning for a final Action Plan that reflects current priorities and carer feedback. Through this continued collaboration, we remain focused on ensuring the Strategy’s legacy delivers lasting change and meaningful recognition for Canberra’s carers.

Carers Week 2024

Carers Week 2024 was a powerful celebration of the extraordinary contribution that carers make to our community. The week reflected Carers ACT’s vision of creating a community that recognises, values, and supports carers, while delivering key engagement activities aligned with the ACT Carers Strategy 2018–2028.

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Flagship Event – Annual Carers Week Cocktail Party

Held at The Boat House, our annual Carers Week Cocktail Party was the highlight of the week and a key deliverable under the ACT Carers Strategy. The evening brought together carers, community leaders, and supporters to acknowledge, recognise, and celebrate the vital role carers play in our region. Carers shared memorable moments connecting with one another, enjoying delicious food and drinks in a beautiful setting, having a dance, and taking time to relax, laugh, and let go for a few hours. For many, it was a rare opportunity to feel seen, appreciated, and connected with others who understand the caring journey.

Guests included Minister Emma Davidson, Carers ACT Chair Thili Perera, members of the Carers ACT Board, and (now former) CEO Lisa Kelly, who hosted the evening and expressed gratitude to carers across the ACT for their unwavering care and compassion.

Community and Cultural Highlights

The week began with a First Nations-led Smoking Ceremony at Wildbark, facilitated by Ngunnawal Kamilaroi custodian Richie Allan. This special event honoured Aboriginal and Torres Strait Islander carers and celebrated First Nations ways of caring — caring for Country, connecting to land, and strengthening social and emotional wellbeing. Richie Allan generously shared the deep First Nations connection to Country, along with cultural traditions that enrich the wellbeing of everyone present.

Carers Gallery Exhibition – Captured by Care

A highlight of Carers Week 2024 was the Captured by Care pop-up exhibition, presented in partnership with PhotoAccess. The showcase launched on 18 October with a display of powerful photographic works created by culturally diverse carers.

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Over five workshop sessions, participants explored the art of analogue photography under the guidance of Eunie Kim, Inoeg Nugraha (Carers ACT), and Wouter Van de Voorde. Using 35 mm cameras and traditional darkroom techniques, carers turned the lens on themselves, shifting the focus from the cared-for to the carer.

During the week, Carers ACT hosted a special screening of the Unconditional documentary film at Palace Electric Cinema, which captured the diverse lived experiences of carers in our community.

Throughout the week, carers also joined Coffee with a Care Planner sessions, Carer Gateway activities, and regular social connection and wellbeing groups that provided opportunities for relaxation, reflection, and peer connection.

The resulting images offered a glimpse into the lives of carers, celebrating creativity, resilience, and the importance of self-expression.

Achievements to date

EDUCATION: Opportunities for young carers, recognition of the skills, knowledge and experience carers gain in their role and validation of this in the workplace.

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  • Successfully advocated for Young Carer identification on all ACT public school enrolment forms.
  • Provided Respite Grants to more than 100 young carers.
  • Delivered Carer Awareness training across both ACT and Federal Government departments (including to Health and Mental Health practitioners).
  • Supported the development of the “Unconditional” carer documentary film and facilitated various screenings.
  • Secured a commitment from the ACT Government to fund a Young Carer Mentoring Program (2024 Election Promise).

INFORMATION ACCESS: Better access to relevant and current information that meets the needs of carers.

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  • Supported carer co-design and distribution on the Foster and Kinship Carer Handbook.
  • Developed the Carers ACT Carer Portal which uses algorithms to identify services and supports that best fit the circumstances of the individual carer.  
  • Developed the Mental Health Carer Navigation Portal website. 
  • Developed the Foster and Kinship Carer Resource Hub, to be launched in 2025! 
  • Created and disseminated a carer booklet with 100 plus ways to build wellbeing and take a break.
  • Secured a commitment from the ACT Government to review the Mental Health Act 2015 to ensure carer involvement in supported decision making and treatment discussions (2024 Election Promise).

ONGOING CARER ENGAGEMENT: Carers know what they need to best support them in their role and this is reflected in policy formulation and review by government and NGOs. Carers are able to determine their own journey.

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  • Co-facilitated the Carer Strategy Governance Committee.
  • Supported numerous ACT Govt departments to establish, policies and guidelines for working collaboratively with carers, including mandating representation from carers on panels and consultations. 
  • Facilitated the Mental Health Carers Voice Advocacy and Policy Advisory Group (APAG). 
  • Created the Carer Collective monthly focus groups to provide feedback on various advocacy issues. 
  • Promoted Carer Friendly Workplace Policies which have been adopted in numerous workplaces across the ACT including The Canberra Hospital.
  • Planned a Carers ACT Policy Advisory Group with sub-committees (coming soon!).

ENHANCED SUPPORT SERVICES: Improving support for carers is a responsibility of all levels of government and the broader community and must consider the diversity of carers and caring roles. 

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  • Created new programs including the Care Tribe / Staying at Home / Caring Together programs.
  • Successfully advocated for the expansion of the ACT Taxi Subsidy Scheme following carer feedback.
  • Delivered Respite Effect and Recovery Grants throughout COVID pandemic.
  • Supported the development of the Paediatric Liaison and Navigation System and Adult Liaison and Navigation Service.
  • Expanded Carer retreats to include Neurodiversity Family Retreats and Retreats for families with younger onset dementia.

ALL CARER NEEDS ARE TREATED EQUITABLY: The different needs of different types of carers must be acknowledged, but all carers must be treated equitably. 

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  • Supported the development of the "Unconditional" carer documentary film which demonstrating a variety of caring experiences.
  • Developed CALD-specific carer social support groups.
  • Supported Ngullaway Art Groups for Aboriginal and Torres Strait Islander carers.
  • Recorded the 'Sharing Common Grounds' podcast series featuring stories of First Nations carers in the ACT.
  • Supported the inclusion of Foster and Kinship carers in the ACT Carers Recognition Act.
  • Successfully advocated for a Charter of Rights for Kinship and Foster Carers interacting with Child Protection Services. 

ACT Carers Recognition Act Update

The ACT Carers Recognition Act 2021 provides the legislative foundation for recognising and supporting carers in the ACT. It enshrines the principles that carers should be acknowledged as individuals with their own needs, aspirations, and rights, and that their knowledge and experience are essential to shaping quality health, community, and social outcomes.

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The Act requires care and carer support agencies to reflect the principles of carer recognition in their policies, programs, and service delivery. This means that carers must be included in planning and decision-making processes that affect them, and that the unique knowledge carers hold about the person they care for should be respected and used to inform care decisions.  As the peak body representing and supporting the ACT’s 58,000 plus carers, Carers ACT is honoured to report on how we promote these principles across systems and sectors.

ACT Carers Recognition Act Report

Progressing the Act

Carers ACT plays a vital role in driving awareness and implementation of the ACT Carers Recognition Act across government, workplaces, and community services. We strengthen this work by building understanding and supporting the practical application of the Act’s principles across public, private, and community sectors.

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The strategic achievements highlighted throughout this report demonstrate how we use the Act every day to drive better outcomes for carers. Other highlights have included:

  • Supporting carers to secure flexible work arrangements by applying the principles of the Act in discussions where employers had not considered the care relationship.
  • Strengthening carer inclusion within the Canberra Health Services Exceptional Care Framework, an overarching document that sets the standard for service delivery across the ACT public health system and now explicitly includes carers.
  • Applying the Act’s principles in over 150 advisory group meetings when providing feedback and advice on topics ranging from health and disability to transport and education.
  • Educating staff across public and private sectors, from health clinicians to those working in out-of-home care, about their obligations to carers under the Act.
  • Promoting the principles of the Act through submissions, policy reviews, and legislation development to ensure carers are recognised and included in decisions that affect them.
  • Using the Act to guide the review and improvement of government and sector materials, strengthening carer inclusion and visibility in clinical guidelines, information resources, and public communications.

Our Staff Survey

Results from the Carers ACT Employee Satisfaction & Engagement Survey Report

Carers ACT is proud to have a dedicated and passionate workforce committed to supporting carers and strengthening our community. Results from the Carers ACT Employee Satisfaction and Engagement Survey, conducted by Your Say in April 2025, reflect a strong organisational culture, clear direction, and deep connection to our mission.

Key Survey Results:

Overall organisational satisfaction

84%

Reflects positive culture, direction, strategy, and inclusion.

Management satisfaction

84%

Confidence in leadership, clarity of goals, and supportive management practices.

Work satisfaction

87%

Highlights employees’ sense of purpose, autonomy, and manageable workloads.

Staff engagement

92%

Demonstrates strong connection to their work and to the organisation.

Motivation

94%

Staff feel motivated by Carers ACT’s mission and objectives.

Pride in the organisation

96%

Staff are proud to tell others they work at Carers ACT.

These results highlight a values-driven culture and a highly motivated, aligned workforce that underpins Carers ACT’s ongoing impact across the ACT community.

Quality, Risk, and Compliance

The 2024–25 financial year marked a period of growth and consolidation for Carers ACT in strengthening governance, quality, and compliance systems.

Carers ACT achieved full accreditation under the NDIS Practice Standards and the Quality Improvement Committee (QIC) Health and Community Services Standards, and successfully passed the Care and Protection Organisation (CaPO) audit. These achievements reflect our ongoing commitment to delivering safe, high-quality, and person-centred services that meet the expectations of carers, the people they care for, and regulatory bodies. Assessors commended Carers ACT for embedding a culture of learning, accountability, and collaboration, and for recognising quality as a shared responsibility.

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A dedicated Risk and Compliance Team was established at the beginning of the financial year, providing centralised oversight of governance frameworks, internal audits, and organisational risk management. This function has strengthened our capacity to anticipate and respond to compliance obligations, coordinate accreditation processes, and maintain systems that are robust, transparent, and continuously improving.

Carers ACT also continued preparing for the new Aged Care Act 2024 and the Voluntary Assisted Dying (VAD) legislation, both commencing in November 2025. These reforms will bring significant changes to consumer rights, governance expectations, and clinical accountability. In response, Carers ACT is reviewing policies, staff training, and governance structures to ensure full alignment with legislative and ethical care requirements.

Looking ahead, we will continue to strengthen our governance and assurance systems with a focus on risk maturity, data-driven quality improvement, and proactive engagement with regulatory change, maintaining the highest standards of safety, integrity, and care for carers, care recipients, and the community we serve.

Financial Report

For the year ending 30 June 2025

Carers ACT has a sound financial position amidst difficult times for the community sector. This is thanks to strong relationships and funding pipelines from both state and federal governments, and a 20-year partnership with Shaw Building Group who provide important and highly valued philanthropic support.

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More recently alongside continued expansion of our services, our team has also grown, and the Carers ACT team has passed 100 people for the first time.

We are investing in our organisation and capabilities to support our growth including expanding our People and Culture team and our Quality and Risk team. This includes additional clinical and intake assessment focus for our cottages to ensure we are delivering the best possible services.

We expect to increase our spending on our staff and staff development materially in 2025-2026 as we continue to grow. We also aspire to be recognised as an employer of choice. Attracting talented individuals to support carers in the community is fundamental to our growth strategy. Providing high-quality training and development opportunities further demonstrates our commitment to investing in our workforce and providing high quality services for carers and those that they care for.

With support from Shaw, we are investing in our new Centre-Based Day Respite facility, which will offer transport services. This centre is designed to provide a welcoming and safe environment for care recipients, offer essential respite for carers, and facilitate transport to appointments, including medical and other necessary services.

These investments in our growth and in our staff and capabilities and our continued focus on delivering high quality services for Carers.

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